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Posts posted by ScoutFinch

  1. The problem with recommending the autoimmune protocol is that fibro is not understood to be an autoimmune disease. I would suggest everyone be *very* careful implementing or suggesting eating restrictions that have more potential to result in disordered eating. "Keep doing what you're doing" might not be the best advice.


    The sad truth is that fibromyalgia is a very, very difficult condition to live with. Sometimes food choices help, and sometimes they don't. I have had the best luck with strength training, because it allows for the greatest amount of movement from day-to-day. But the groggy, foggy, painful exhaustion can hit me no matter what I'm doing otherwise.


    It's very hard to be strong and to keep on. I hate it when they say fibro patients "are known to be perfectionists" (does that mean, um, unlike yourself, Doc?) but it's really true that Job 1 has to be compassion for ourselves and what we can do today. If that means three hot baths and four hours on the couch with One Life to Live, then that's today. Remember that you are whole, no matter how unwell you are.

  2. Now at Day Seven today. For the past three days, I've been feeling like pain is moving through my arms and legs like some kind of hot nasty liquid, and fog is a little worse than it had been. I'm trying to track when this happens, and we've also had some severe damp weather moving through. But digestion is better, skin clearing up, and on a few days energy levels have been pretty great. Will keep on keeping on, and sending good wishes to everyone else here struggling with this.

    lulucandoit, I am going to do the 30 regularly, but will also see after that if another 30 days without nightshades makes a difference--two days ago I had a larger serving than usual of tomatoes, and about an hour later did feel an increase in pain and lowering of energy. Could have been a coincidence and I'll do the first Whole30 without trying to make that determination first, though, but thanks for mentioning that.

  3. Thank you for the warm welcome! "Others I can't think of right now"--that's a great fibro joke. I would really encourage you to start strength training. The deconditioning that comes from fibro is as I'm sure you've read a great part of cumulative pain. Getting into conditon, even a little, I think is so important. The having to start over again so frequently has been hard for me, but I know that not trying to keep it up makes things much, much worse, and results in even walking causing a flare I can't afford. I started working with a trainer this year, but I don't believe I'll be able to continue to afford it, yet I've learned a great deal about form and that kind of thing. You are quite right to keep it simple. A great starter book that you can do the exercises at home if you invest in the weights is the Strong Women Series. Strong Women Stay Young has a great routine of about 8 exercises that are very doable at home if needed. Also, the Oregon Fibromyalgia Assocn. has a wonderful stretching DVD, and I have followed that routine for something like 7 years now. I think just starting that stretching has helped me progress a lot. And I did finish that half marathon (crying, but I did it!). I wish you great luck!

  4. I also have fibro and was on disability for three years, about two years after the diagnosis in 2002. I started a couple of months ago thinking harder about diet, very difficult for me to do, but as these things often happen, I started with Web.Md, which led me to Wheat Belly, which led me to Summer Tomato's blog, which led me to Perfect Health Diet, which led me here, all pretty quickly. Wheat Belly allows for so many ways to eat inflammatory foods (most of which I didn't know were potentially toxic, like beans). PHD seems like a very good "off-Whole 30" way to eat, but when I found Whole 30 after that (via a blog from a lovely Indian guy whose name I can't remember, if somebody does--it's not Kamal, but something like that, and he reviews Paleo blogs quite a bit--actually it was through him that I found the blog tummyrumblr and on that blog found this--sorry--you know what thinking things through is like when you have chronic pain and fatigue!)

    Anyway, I'm officially on Day 0 because I reset after four days, realizing that I'd been eating probably too much fruit, plus some salted roasted nuts that may account for the bloating every evening. So, that's my first question: how much fruit do you all eat and still feel okay? (I know I hold on to fruit as my sweet tooth fairy.) But last night, I slept all the way through the night for the first time in ages, and I think reflux is improving, too.

    Pain yesterday was very harsh. On Wheat Belly, after the first four days I then felt terrific for about three weeks, and then the pain came back double at least.

    As to exercise, in 2008 I decided to train to walk a half-marathon, because of something I'd read again about exercise and aging. I figured if the fibro was too much for the goal, at least I'd have been walking several times a week. In the program I used on, you had to include one day of cross-training, and for the first time I started to lift weights regulary (1 pound for some exercises, body weight on others). What I found almost immediately was that strength training in particular cut my fibro pain drastically, probably in half or more.

    Now (as now, having been out of the gym for two weeks fighting an infection), when I don't strength train, the pain comes back in full force. Why this should be so I can't tell you, but it's definitely been the case for the past four years, very reliable. Right now I lift on my own once a week, and work with a trainer using TRX, kettle bells, and other "functional" weights (my trainer one of those human performance guys), and it's really good. I tried 3x/week and that was too much.

    This also makes other exercise very doable. I walk, jog a little, and have discovered the rowing machine, which is wonderful beyond words.

    I don't get to the gym every day, but aim for 4-5 times a week, and try to walk a little every day, and compliment the activity with about twice as much rest as I worked out, and that seems to be a good balance for me.

    I am really hoping that adding this piece of non-inflammatory eating will take the rest of the edge off, since I can no longer tolerate pain meds of any kind.

    Thank you for staring this thread!