Deborahnadel77 Posted July 16, 2015 Share Posted July 16, 2015 Roussa57, I was just diagnosed with Marfan Syndrome following an aortic dissection in february, although I strongly suspected it since childhood. It is extremely overwhelming. There's a really helpful Facebook group if you have questions, or you can contact me at [email protected]... Best, Deborah Link to comment Share on other sites More sharing options...
Roussa57 Posted July 17, 2015 Share Posted July 17, 2015 Thank you all so much for your support! And Deborah so sorry to hear you have Marfan syndrome. I sent you an email. It is really overwhelming for us too. kind regards, Marion Link to comment Share on other sites More sharing options...
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