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Anyone else with dysautonomia/POTS?


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Hi there. I'm on Day 3, and I just wanted to check in to see if anyone else doing Whole 30 has POTS.

If so, do you have any guidance/suggestions/recommendations for me about Whole 30? I have POTS along with bad fibromyalgia, and I am trying this to see if it will help me feel better.

I wish you the best--I know this disease is not easy.

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Welcome! I have all of that and more. :) The big caution that my cardiologist gave me a week or two into this is to make sure to keep electrolytes, water, and salt up. Packaged and junk food have lots of hidden salt, so when you give all of that up, without meaning to, salt consumption can go down.

Best suggestions I have gotten are to make bone broth. Salty bone broth with sea salt. Also magnesium - either Natural Calm or Slow mag. I also got Elete electrolytes here: http://www.amazon.com/EleteTM-24-6-Ml-Pocket-Bottle/dp/B0018N27UY/ref=pd_bxgy_sg_text_y which don't have any funky ingredients and are totally tasteless. I take that one or two times a day and it helps a lot.

I also try to eat lots of super green veggies like collards and kale and organ meat, which have lots of the same stuff.

I am on day 29, and overall things are much better. For a while my heart was was so bad, I went in to see the cardio and he wanted to up my medicine and for me to consume more electrolytes. I have been doing the electrolytes and have not increased my meds and my heart is about where it usually is. Not worse, like it was early on in W30, and not a magic cure.

I am planning to continue and do the next W30 doing AIP. Other symptoms are much, much better. The biggest difference I notice is sleep - I am regularly getting 6-7 hours and sometimes more, which is unheard of for me. Also pain, noticeably lower, and energy noticeably higher. It has been rough some days though, especially early on.

Good luck! :)

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Thank you SO much, lulucandoit!!! I really appreciate your information, and I'm proud of you for handling it so well when you at first got sicker--you rock.

I forgot to mention I have thyroid issues and other stuff...I am sorry you have "and more", too! What a party for us, right? :P

I wish you the very best on the AIP, and in life in general.

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I don't have any information to share, but I'll be watching this topic as a relative has POTS. I wish you the best on your Whole30. :)

mary-t: I will try to remember to come back and check in later and report how it's going! Good luck to your relative, whatever path s/he takes.

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Thanks, Betsy133, that would be great. I wish you the best of luck. :)

Hi Mary-T! I know it's still pretty early (I am on Day 12), but I wanted to let you know that I have not had a headache in 10 days, and that is a big deal for me. I'm not certain whether this is specifically POTS-related (I have TBI, fibromyalgia, hpothyroidism, etc.), but if your relative has headaches a lot (mine were almost daily), tell him/her that this might help!

I'll report back if I get more findings.

Betsy

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Betsy - just wanted you to know that my POTS has definitely gotten better. So much so, that I have not increased my medication and in fact, have decreased it. Sea salt has become a big thing. My family teases me over how much I salt my food now, but it is crazy how much it helps. I have three different kinds (pink, french and icelandic) and salt the heck out of my food. I never really liked salt before, so it's new behavior for me. I also take magnesium most nights and take an epsom salt bath most days. I have been eating a lot of organ meat and dinosaur kale. I am going to try the lemon juice and salt water recipe from the other page and see if that helps as well.

Great to hear that your headaches have decreased so much. I was regularly having 2-3 migraines a week, and on a bad week, daily migraines. I haven't had a migraine in quite a while. Really, it's rather amazing to me. :)

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Thanks, Betsy, for the update. I'm so happy for you that things are improving. Now, I'll have to work on convincing my relative to give this a try.... Headaches are a huge problem for her; she has them everyday. So, I can only imagine how relieved you are not to have them. :)

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